When the Leaks Started

After years without issues, I suddenly faced leaks with almost every bag from a new box. This pushed me to investigate the real reasons instead of blaming myself.

I angle my bag slightly to make emptying easier, as many people with ileostomies do. My output is looser than with a colostomy, so I empty multiple times each day. Still, stool kept leaking from the bottom edge even though I closed it tightly and found no holes. If you've had a leak, you know what that's like.

When your bag starts leaking, remember: it's not always your fault. Focus on finding the real cause, such as a bad product batch, output changes, or increased activity, instead of self-blame. Understanding the cause helps you solve the problem more effectively.

Leaks can trigger a chain reaction. Changing bags more often means the adhesive comes off your skin more frequently, causing irritation over time. I started being extra careful about skin care between changes: letting my skin breathe for at least 10 minutes and using a barrier wipe (a protective wipe that creates a layer between your skin and the adhesive) before reapplying. This helped. Also, bags are expensive, so if you use them up faster, mention this when you contact the manufacturer.

That Really Bad Night

One night, a leak got really bad. I was staying at a friend's place, and while I was sleeping, the adhesive opened up. Stool came through the adhesive and onto my skin, and even came through the barrier ring. I was so tired I didn't even wake up. By the time I did, the stool had been sitting on my skin for hours. Think of a baby left in a dirty diaper for too long, and the kind of rash it can cause. I got up, showered, cleaned everything up, and got on with it. Not ideal, but manageable.

When leaks happen, it's easy to blame yourself. I kept questioning my habits until I realized that nearly every bag in this batch leaked, which led me to suspect the product itself.

What Actually Causes Leaks

Here's what I learned: bag leaks can come from a lot of different places, and a bunch of them have nothing to do with what you're doing wrong.

I figured it had to be something. The batch, maybe. My output looked normal. Angle seemed fine. My skin was irritated, though, which doesn't help, since moisture disrupts the seal. Changing bags constantly probably wasn't doing the adhesive any favours either. And I'd been busier than usual. Hard to pin down.

When to Ask for Help

If you're dealing with persistent leaks, it's worth bringing this stuff up with your ostomy nurse or care team. They can help you narrow down what's actually going on and what might need to change.

One thing I've been thinking about is reaching out to Coloplast directly. If I were running a company that supplied ostomy products, I'd want to know if something wasn't working the way it should. A full box of leaky bags from the same batch is exactly the kind of feedback that should get reported. It can feel awkward to make that call, but these companies have dedicated customer service teams to handle it. You don't need to feel like you're complaining.

If you suspect a bad batch, contact the manufacturer. Note the lot number on your box, describe exactly what's happening, and ask about a replacement. Most ostomy companies take product issues seriously.

What Actually Helps

Leaks make me self-critical. But five years with an ostomy has taught me this: many issues are beyond my control, and sometimes it's the product, not me. Self-compassion is key.

My friends didn't care. I was harder on myself than they were. You get used to it after a while. Clean up, change, move on. Still annoying, but you know what to do.

What helped: extra bags everywhere (especially for overnight trips), being careful taking the bag off so I didn't make my skin worse, giving my skin 10 minutes to breathe, barrier wipes before the new bag went on, and writing down lot numbers. Also, not panicking when something felt off.

If you're new and just had your first bad leak, it does get easier. You figure out what works for you, and it stops feeling like such a disaster every time.